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New BPSU surveillance study into FPIES

The British Paediatric Surveillance Unit (BPSU) have launched a study into the incidence of children with Food Protein Induced Enterocolitis Syndrome (FPIES).

This is the first nationwide study of FPIES in the UK. This study will tell us how common FPIES is in the UK, what foods can cause it and the range of symptoms that children exhibit during a reaction. It will also improve awareness of FPIES amongst paediatricians’ as every consultant paediatrician in the country will be told about FPIES through the BPSU. This has the potential to benefit patients and families through improved recognition leading to quicker diagnosis of FPIES. We hope the results of this study will encourage further research, including ways to help to cure FPIES.

The study is being funded by the Midlands Asthma and Allergy Research Association (MAARA). Furthermore both FPIES UK and Allergy UK have helped support this study.

Any suspected cases FPIES from January 2019- January 2020 that meet the agreed criteria should be reported.

The study will run from January 2019 to January 2020 (13 months of surveillance). The lead investigator is Dr Gary Stiefel Consultant in Paediatric Allergy, Leicester Royal Infirmary.

If your child is <24 months and has a diagnosis of FPIES made between January 2019 and January 2020, please complete the consultant notification form and send it to the paediatric consultant who made the diagnosis. This will hopefully encourage reporting of FPIES cases to the BPSU, so that we gain more information about this rare condition. Thank you.

More information about the study can be gained by following the link below:


Consultant BPSU notification form
Consultant Notification of FPIES Case Fo[...]
Microsoft Word document [874.5 KB]
BPSU study Public Information Leaflet
Adobe Acrobat document [309.5 KB]
Compressed archive in ZIP format [1.8 MB]

If you require hard copies of the pack please Contact Us and we will happily post them to you free of charge.


During half term Joseph, Keira, Maggie and Cobie were very excited to have the opportunity to take part in an FPIES UK promotional photoshoot with the very talented Lucy Wright from Lucy Wright Design and Photography. The children really enjoyed pretending to be Doctors and making Frankie Bear better. We are very grateful to Lucy for all her time, help and support with this project. Having experienced the frightening nature of food allergies with her own child, Lucy kindly offered the photoshoot and resulting pictures free of charge!


Find out more about Lucy on her website and Facebook page.


Lucy Wright Design & Photography

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