FPIES

SUPPORT.

FPIES is a poorly understood condition, but there is help available.

Most people, even close friends and family will not understand what it is like to care for a child with FPIES. The stress that comes with food trials cannot be understood.

For most parents watching their child try a new food is a non event, or even exciting. For an FPIES parent it can be terrifying waiting hours to see if the vomiting or diarrhoea will start, not wanting to leave the house in case they become unwell.

If you would like to connect with other families navigating their journey with FPIES, there is a UK-based group on Facebook for parents and carers of children with FPIES.

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FPIES Support UK Facebook Group

This is a friendly, supportive community who deal with severe non-IgE allergies and their effects on a daily basis. This support group may help if you are looking for support from people going through similar experiences. Members may be able to: provide advice about where to get help and information; recommend healthcare professionals who have been supportive; offer advice on coping with social situations; provide recipes and product ideas suitable for those with particular dietary restrictions.

The FPIES Support UK Facebook group is a community run by parents for parents, and is not run by the FPIES UK charity. Please remember that peer-to-peer advice received on the FPIES Support UK Facebook group is not a substitute for proper medical advice (see community rules). Official information and support provided by FPIES UK charity is found here on this website.